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Wednesday 2 November 2011

The Sea remains the Sea .........

Well it has been a couple of weeks since my last blog and I am sensing that this may be my last for a while.
I am now a seasoned traveller on this breast cancer rollercoaster - some seasons have been sweet and some sour.
My mum returned home over a week ago now and it goes without saying that I miss her !



These last months have been a whirlwind of happenings , breast cancer diagnosis, tests, hospital appts, mastectomy, chemotherapy , radiotherapy, specialist exams , visa applications to name a few.
It is been my desire to be as positive as I can be through each step of this road.
On the whole I have been managed to see humour at points along this road - thanks goodness for laughter.

There have of course been tears too - more recently as the pace has slowed down with treatments - I have found there have been more of those. I have found these last weeks a particular challenge.
I guess its part of the process - there has been loss.
Loss of hair , loss of breast , loss of health etc.
It has been an unexpected road with unexpected highs and lows with it.

The highs of endless meals arriving for my family , surprise packages arriving at just the right time in the post, encouraging cybermessages and love of friends and family.
Our lives will never be the same - and as I enter the next chapter of this treatment I know that this will be with me for the rest of my life.
One of the biggest effects of this has been on my beautiful daughters - they have had to deal with so much at such a young age .
Each one has 'handled' it in their own way - I am so thankful that we have been able to keep chatting and cuddling all the way through.
My youngest who has just turned 10 has had such a struggle this year and it has broken my heart to see her pain .
Sadly her school life has contributed to this and I know she is not without fault as she struggled to deal with the thought of me dying but you would find it hard to believe what has been said to her from her 'friends' and 'adults' in her world.
Anyway it is not to dwell on these things - we have to hold each other close and keep moving forward.
I have been amazed to see the strength of character she has shown for someone so young and how she continues to tenderly love me.
The head she was she worried to see without hair - she has been giving a daily kiss.



I have been so touched also at how God has met me in my lowest moments - it is at those times that a gift would arrive in the post , a friend would send a message.
Just this last week when I was feeling particularily low - a lovely friend from overseas sent me a text - it said - I was thinking of you this morning and felt to send this .
The Lord your God is with you
He is mighty to save
He will take great delight in you
He will quiet you with his love
He will rejoice over you with singing

I cannot tell you what an impact that had on me to receive that on that day - needless to say there were more tears.
Just yesterday another friend told me of a picture she had for me and how I was to nestle into my heavenly Father and let Him carry me.
Just such an encouragement - I am not very good at resting but I know that I can't do this on my own.
I am so thankful that I have my faith so when I am faced with my own weakness and vulnerability I can be sure that He is strong!!
Now more than ever I am so aware of the power of love.
A kind word or gesture can have far reaching impact.
I am so thankful to all who have been reminded me of this and to have drawn my focus back onto God who is Love itself.
The same friend who sent me the above message sent me this which I think says it all.
I will leave you with this - although the future may remain uncertain and I have decisions to make - ONE remains certain.
I want to hold on to HIM tighter than ever before...................



 Henri JM Nouwen writes

Dear Lord
Today I thought of the words of Vincent van Gogh.
'Is it true there is an ebb and flow, but the sea remains the sea?'

Lord you are the sea.
Although I may experience many ups and downs in my emotions and often feel great shifts in my inner life - You remain the same......
There are days of sadness and days of joy, there are feelings of guilt and feelings of gratitude, there are moments of failure and moments of success , but all of them are embraced by your unwavering love.
My only real temptation is to doubt your love.....
To remove myself from the healing radiance of your love.....
To do these things is to move into the darkness of despair.

O Lord sea of love and goodness.
Let me not fear too much the storms and winds of my daily life - and let me know that there is ebb and flow ....... but the sea remains the sea.

Love Came Down ( click here to hear a song)

Thanks for joining me on this journey via this blog - til next time xx

Wednesday 19 October 2011

It is finished .... bye bye radiation bye bye !!!!!

Well after 5 and half weeks - it is done. Today was my last radiation. yippee !!!!
It is quite amazing to think that 28 treatments have come to an end - it is going to be strange not driving daily for my zapping!!!

I have had a very spoily day. A lovely friend took a days leave to go with me and spend some celebratory time together. Thank you N.
It was such a treat as we haven't had time together for quite some time - well we made up for it today.
Started the day with my usual zapping !! At the radiotherapy place there is a wall covered with colourful handprints and today I found out that those prints are from patients after they complete their radiotherapy!!

Today was my day to make my mark - I had my hand covered with green paint and a photo was taken of me making my print on the wall!
What a wonderful idea !
So I was done - a quick visit into the radiooncologist on my way out and I was done.
I had had some bloods taken last week as I  have been having tenderness over my ribs - thankfully all was good and nothing of concern. Just a reaction to radiotherapy possibly and nothing more sinister so the scene was set for a celebratory day.
So I through my delightful striped gown in the washbin and we were off!!



Our first step was brekkie at a beachside cafe - I just love seeing the sea - the day was a bit overcast but wonderful to see the waves never the less!!
We had a very relaxing time and my friend was given the most enormous muffin I have ever seen - I kid you not I have never seen such a huge muffin. It was the size of the plate it was sitting on.


Next stop was a bit of retail therapy - and then back to the beach for more relaxing and watching the waves!!
Such a wonderful way to spend a day - we headed home in time to pick the girls up from school - we got there a bit early so there was just time for another cuppa at my friends as she lives nearby.
Definitely the way to spend a day - and still I feel pooped!
I had another lovely surprise tonight - we heard a knock at the door and there was a friends husband standing with a bottle of bubbly to celebrate the end of my radiotherapy road!! Our farm gate was closed but they had thought it was locked so my friend had stayed in the car while her hubby had walked all the way up our rather long drive to bring us the bubbly. How thoughtful.
Sadly cancer can be a very isolating illness so I felt very spoilt today !

I have my IV herceptin again tomorrow ( still about 6mths of that to go )and then an appt with the oncologist in the next week or so to look at starting tabs to block the oestrogen. Before that I have to go to the dentist and have a thorough checkup as per the oncologists instruction before starting bone strengthening meds that accompany the hormone inhibitors!!
So the rollercoaster continues but some major twists have come to an end!!
I am pleased to report that my hair is beginning to sprout - it is still sparse but present and I am so looking forward to ditching the head gear and going au natural - a bit more growth on the patchy bits and I'll be there.
I can't wait............

Friday 14 October 2011

Hey , hey, hey its FRIDAY ....

Woohoo its Friday.
The end of the week has taken on a new meaning since starting radiation - I love fridays.
2 days and no radiation !!! Thankfully next week will be my last week - as I said before the staff there are lovely but I will be glad to leave this chapter behind!!!

Well it has been a week of ups and downs - it started in tears and ended in laughter.
At least thats the best way round!!
I found myself quite emotional and teary at the beginning of the week - I think it was just an accumulation of things amidst the ongoing treatment.
I had a coffee with some friends at the start of the week and found myself in tears when I was asked about how I was.
I had been feeling tenderhearted for a day or so before - I thought I could hold myself together to share a cuppa - but no there I was crying in the coffee shop.
I managed to regain my composure but have to be honest I had a good sob when I got back home again !

This whole treatment road has had challenged so many areas of life.
My health , the daily comings and goings of everyday life , relationships , planning for the future etc.
I think that with that and the car accident, poor Gus dying and my mum in hospital -not too mention our ongoing business to stay - it all came bubbling over!
I feel a lot better after clearing my tear ducts - sometimes we just have to let go and let it all out!!
I have been going to radiotherapy by myself this last week or so but mum came with me the day after my tearathon and we went to sit and look at the sea after.
It is so incredibly therapeutic just watching the waves roll in on the sand. It was a glorious day and just so refreshing !!



 This was our view from the bench we were sitting on - not bad !!!!!

So today was a bit of a giggle as the radiotherapy place I go to was having a pinkoktober morning tea to raise funds for a local breast cancer charity.
The staff were all decked out in bright pink and the place was decorated with balloons etc.
All very festive.
Well when I went in the lady technician that called me had bright pink glasses and tshirt and looked great. We had a laugh going in and she was telling me about all the pink dressup bits and pieces that they had at their disposal!!
The other guy was wearing a pink top but heard us chatting about the dreesup bits and pieces and said wait I'll show you what we mean.
I settled myself on the bed and then he returned with a luminescent bright pink curly wig and pink garland around his neck.
Needless to say I burst out laughing - had tears running and of course all this giggling wasn't good when you are supposed to be lying still to have your tattoos and position lined up!!!
I told him it was pretty hard to take him seriously - some lippy and earrings and there we have it Priscilla queen of the desert!!!

So there you are - a fun day today. A rollarcoaster of emotions in a matter of days.
This is a ride with ups and downs for sure - I am holding on tight.....
Carpe Diem ...

Monday 10 October 2011

Its all about love ......

Well hello all!

I am sitting here with my trusty laptop typing away - I can hear poor Gemma calling outside.
She is so heartbroken at the loss of Gus. Every day since his death she calls for him. They did everything together - each night as dusk was settling in they would walk down to the dam together and have a swim before settling for the night. Quite romantic!
Since we lost Gus , Gemma avoided going to the dam for the first few days and now she goes and each time she is there she calls for him.
I have had a number of sleep disturbed nights as she calls periodically for him in the wee small hours.
Each time she sees me when I come home from radiotherapy she waddles over calling - as much to say have you found him!!!
She is quite lost without him - he was always there her great white protector!!
It really tugs at my heart!

I have been thinking a lot about love and acceptance this weekend - I watched a dvd on the weekend which was about a young attractive guy who was all about appearances and success . A modern day tale a bit like beauty and the beast. His life is turned upside down when he loses his looks and the only way he can change back is to find someone to love him as he is.
His life has been all about himself and he had little regard for anyone elses feelings!
Needless to say it is a lovestory where he learns about himself and what is really important and in the end he gets the girl and finds real love.
Just seeing the extraordinary connection between 2 geese and watching this movie just brought to mind again the power of love and connection.

In a world that at times is pretty disconnected - how beautiful to believe in and see the power of love.
It is something we all need.
As in the movie love is not something that we can demand but rather is something that we can give and hopefully receive as another gives.
In life we may at times have relationships that break down , at times we may be misunderstood , at times we may be hurt and at times we may hurt others. Yet each of us has our own story , each of us has our own road with twists and turns. I remember years ago reading that old proverb that says 'Never judge a man until you have walked a mile in his moccasins!" I just love that !
We may not really know anothers journey but we can love them along the way.
There is a beautiful exchange in the movie where the main character says to the girl. "When I am with you I don't feel ugly anymore"
How wonderful to feel so free and loved that the very thing that seemed to big in his life lost its hold.

I was just struck that that is how it is with our heavenly Father and His love for us.
He welcomes us with open arms no matter what!
He wants to love us no matter what!
He wants to be our safe place!
He wants that connection with us!

One thing about having breast cancer is that all the top dressing is taken away.
You are stripped to what lies beneath - what ever that may be.
Love is indeed refreshment to the soul.

So I guess I am reminded that we should always try to show our love freely, reach out to someone and tell them you care.
I know when our own tanks are low this can at times be a challenge - but if we run into the arms of Love itself - we too can receive and be strengthened!

Evelyn Mandel said

" Love allows us to live , and through living we grow in loving !!"

Friday 7 October 2011

After the rain .....



Well it has been a rather interesting day today.
The sun is shining in more ways than one.
I did my usual trip to radiotherapy this morning after dropping the girls off - I was sitting having a coffee afterwards at a nearby bakery when I was approached by a trendy young mum holding her young daughter in her arms.
She asked me if I was having chemo - I am still wearing a headscarf even although there are beginnings of hair it is VERY sparse!
Before long we were chatting away - she had been through treatment last year while she was pregnant and just wanted to encourage me and let me know about a group that she went to and invited me to come along.
How amazing is that - that after my low ebb yesterday an absolute stranger should approach me with encouragement.
A coincidence !!! I don't think so.
I had been thinking about connecting in with some other women going through this journey but hadn't really done anything in the physical.
I have connected in in the cyber world but you know there is nothing like human contact!!!
I was just saying to mum that in a world that is so involved with cyber technology we often miss out on that face to face interaction. I know myself that sending a text is usually the first port of call rather than picking up the phone and speaking etc.
I have also however received a lot of encouragement across cyberspace and I am very appreciative of that too of course!!
Anyway I am now going to brave it and visit one of the coffee mornings and see how it goes!!


I did have a number of lovely messages last night and this morning - thank you.
One of my lovely overseas friends sent me a wonderful email and in it she had written the words of this song


 After the Rain - Aaron Jeoffrey lyrics are:
I cover my heart
Turn from the wind
Button my coat
Here comes the storm again
What can I do but to trust in Him

'Cause I know the deeper my faith runs
The stronger I become
And the thunder, it may shake me
But I always know that¡¦

CHORUS:
After the rain
You can look to the sky again
The clouds will give way
To the light of the sun
After the rain
You know that you've made it through
And you'll finally see the joy from the pain
After the rain

Everyone needs
Everyone hurts
Everyone feels
The weight of the world sometimes
But don't let the wind sweep your heart away

'Cause even the roughest waters cleanse
So when they come again
Let them serve as a reminder
You can always know that¡¦



Chorus ;
Can't you see the hand of Jesus 
Reaching out for you
You never have to face the storm alone.


If you would like to hear it please click the link below
www.youtube.com/watch?v=W717Cra83qg&feature=related


How wonderful are those words - they really touched me.
This same friend had posted me this wall sticker which I have put onto a canvas !!
As she said though , the rain always stops and the sun does come out again.


Thank you all near and far for helping me see the sun !!!!!




And for a bit of a giggle my dad just sent me this ....




=================== 
YOU KNOW YOU ARE LIVING IN 2011 when...

1. You accidentally enter your password on the microwave..

2. You haven't played solitaire with real cards in years.

3. You have a list of 15 phone numbers to reach your family of 3...

4. You e-mail the person who works at the desk next to you...

5. Your reason for not staying in touch with friends and family is that they don't have e-mail addresses ..

6. You pull up in your own driveway and use your cell phone to see if anyone is home to help you carry in the groceries..

7. Every commercial on television has a web site at the bottom of the screen.

8. Leaving the house without your cell phone, which you didn't have the first 20 or 30 (or 60) years of your life, is now a cause for panic and you turn around to go and get it.

10. You get up in the morning and go on line before getting your coffee.

11. You start tilting your head sideways to smile. :)

12. You're reading this and nodding and laughing.

13. Even worse, you know exactly to whom you are going to forward this message.

14. You are too busy to notice there was no #9 on this list.

15. You actually scrolled backup to check that there wasn't a #9 on this list.

AND NOW U R LAUGHING AT YOURSELF

Go on, forward this to your friends. You know you want to.




Thursday 6 October 2011

Joy will come in the morning ......

It is a cloudy overcast day here today.
There is a weird stillness in the air - or perhaps that is just reflective of my mood!

We are all somewhat sad in our household today. Gus our male goose died in the night from a paralysis tick! His poor mate has been calling for him all day and now she has settled next to the spot where he died - it is too sad.
My youngest daughter and I hugged each other and cried together this morning when we found him.
It is a sad thing in itself but to be honest it is another thing in our long list of recent challenges!!
Mum came out of hospital yesterday and is at home recouperating - she is still having the headaches but we are trusting that they will resolve over time as she takes the meds etc.
It has been so disappointing that her last month here she has been suffering the effects after our accident.
I have spent the last week going to radiotherapy and then up to the hospital to see mum - certainly not what was on the cards.

It is Breast Cancer awareness month internationally - there are adverts about raising funds, awareness etc. I had hoped to hold a fundraiser myself but just really can't manage that at the moment. I guess for people who know me - they already have an awareness.
 Pinkoktober has really brought home to me what I have and am facing. We watched a program the other week about 7 ladies and their fight against cancer and just how it had affected and changed their lives.
There are times that I still cant believe this journey that I'm on - our lives have been irreversabily changed and challenged. There are times when I hate the colour pink!!
It is amazing to think that it is 7 months since I was diagnosed - sometimes it feels like there is no end in sight.
At times I wonder whether there will be a day where I don't have to face the discomfort under my arm and chest from the surgery.
I wonder whether there will be a day when surviving breast cancer won't be at the forefront of my mind.
I wonder what life will be like after - what will I be like?
I know that good has come from this too - and I know now more than ever the importance and value of my family.
I am thankful that I have one.
I am also thankful for all the mums from school and family friends who have continued to feed our family - it has been such a blessing and encouragement.
I am thankful for all the cyber support.

I am just feeling worn out now - someone said to me yesterday that God doesn't give us more than we can handle. Well I'm not sure I can handle anything more!!
My faith has sustained me this far and lifted me up from the darkness into the light, it has helped me fight the battlefield of the mind and it has given me hope.
I am praying now for a break - it is enough having to face one fight but they keep piling up!!
I am looking for the "joy to come in the morning"
A friend said they don't know how I have managed to keep a sense of humour in all of this - for me you have to see a funny side - but just now its not looking so funny.
Anyway I may have said it before but I know that although it is overcast and dull today - the sun has not moved away - it is still radiating behind the clouds with a warm and comforting glow.
I will keep my eyes searching for that sun so that I may feel the warmth on my face and the lightness in my spirit again.


Sunday 2 October 2011

Friday night in emergency - oh la la x

 Well this weekend we had had a few lovely invites for a bit of dinner and socialising !!
( I must just say that Friday started off with a parcel in the post - a  lovely friend had sent me the most exquisite flowers in a box! It made me tear up as I had been feeling quite weary with it all and it was such a timeous surprise and perfect boost for what was to unfold - I said to her that I thought she must have a heavenly connection as something from her always arrives at just the right moment!!)
So back to the story - I had been so looking forward to getting out this weekend as we have all been in a bit of a treatment cave and out of touch - it was to be mums last weekend so a few friends had wanted to say farewell.
I guess by now I really should always just be expecting the unexpected!!
Instead of socialising in friends homes - since friday evening I have been socialising in the hospital!!!!

The other twist to this tale is that I have been the visitor and not the patient this time!!!
Poor mum has been battling with headaches since our accident a few weeks back - I have blogged previously how we had it checked out and she was given the all clear. It seemed to go away a bit but the last few days was coming to the forefront again - without going into all the details - by Friday it was really not lifting. We had been invited to some friends on friday evening and we were on our way there but when we got there mum wasn't too great so as the local hospital was near by we thought best to go and get it checked as it was the start of the weekend!!
Well our adventure began!!
We didn't have to wait too long before being seen - but emergency was very busy - every bay had a patient in it and as soon as one was emptied another person would be wheeled in.
All sorts of drama was unfolding around us - a patient was shouting all sorts of obscenities amongs other things at the top of her voice for quite some time, the patient next to us was vomiting ten to the dozen and shouting too , another was relaying the story of how her partner was attempting to assault her , a young girl came in with a neck brace on - she had been in a car accident and she and her friend soon had the giggles etc etc.
And within all this the amazing ER staff managed to remain pleasant and polite!!!!
Mum was sent for some tests etc and was seen by a Dr who said they wanted to keep her overnight for observation.
We remained in the ER for quite some time - a wonderful nurse got me a chair, pillow and blanket so that I could relax next to mum while we waited to see if we were going upstairs!!
Well it was around  5 hours later that we went up to the ward.

On arrival a lovely nurse settled mum in whilst another made us a cup of tea each and gave mum some sandwiches.
Was a real blessing to be met with such thoughtfulness in the wee small hours of the morning!!
I didn't have my car - so was planning just to stay with mum until the morning as it was too late to get home - I had anticipated a night in a chair or patient lounge.
As it happened mum was put in a 2 bedded room and the ward was unable to accept any further patients that night so the nurse said I could lie on the bed until the morning.
I was so thankful - this turned out to be such a giggle!!
Once the admission was complete it was lights out - well I was on this bed and I really felt like it was moving!! I knew I was tired but didn't think I had lost my mind completely.
Every time I moved the bed readjusted itself underneath me - turns out it is a very fancy pressure mattress to prevent bedsores and the like !!
Well initially I have to say I felt a bit sea sick but soon settled - I didn't get much sleep but a few hours in between. Poor mum slept well which was great!!
I hopped out in the early morning and sat back in the chair!!

So Sat and Sun have been spent with trips to and from the hospital - they will probably do another scan tomorrow - mum is staying in as its the weekend and they have just been keeping her under observations.
We are hoping that after the scans tomorrow - she can come home. They are thinking that this is  an ongoing concussion from the accident and that it should self resolve in a few weeks. We will know for sure after tomorrow.
So as I said - we have socialised but not with the people we thought we would.
Not quite the last weekend we had in mind!!!

I am now in my own bed - feeling shattered !!! I am slightly apprehensive about saying lets see what tomorrow brings!! But I guess i just did.
The girls are back to school after their holidays and I am off to radiotherapy first thing to commence my week of zapping - after that it's anyones guess!!

Just keep swimming, just keep swimming.
At this stage I think I can just about manage doggy paddle................

Thursday 29 September 2011

Time machine please .......

Well what a day it has been.

Today was my '3 weekly' trip to the hospital for my dose of IV herceptin at the oncology unit.
The girls were at a friends where they had their holiday moviethon - this holiday the theme was mermaids - so all was red and blue. Red as Aeriels hair and blue as the sea.
So mum and I headed off to hospital just the 2 of us. I was due to start at 9.30 but when we arrived the unit was very busy.
I was due to go to radiotherapy after for another zapping. When I hadn't been called in after 10 I had a feeling it would be one of those days!!
The staff were as friendly as ever but very busy and a few staff down.
I have been having some discomfort in my chest these last 2 weeks - I have attributed that to heartburn linked to the radiotherapy.
The staff wanted to doublecheck my heart just to be sure - so I had an ECG. There were a few problems in getting it set up but I am pleased to say that the results were fine and the Dr was happy to go ahead.
Unfortunately the first attempt at getting a line up was unsuccessful and extremely painful - so I was left with a heat pack on my arm .
Another staff member was called to give it another go - thankfully she is a whizz and she had success.
I was running so far behind by this stage that I had to phone radiotherapy to change my appointment to later in the day.
My appointment at oncology should have been about an hour - but instead I was there for about 3!!

It was then back in the car and off to get the girls. Miss C also had an appointment at the dentist at 3 so we were all going to head down to radiotherapy and then on to the dentist!!
My friend who had had them had tea and lunch waiting for us. What a blessing - so we munched it down and off we went again.

We were cutting it fine and on arriving I flew into the change room and through my strippy gown on as quickly as possible!!!
This is no 14 today so the rads chap noticed I wasn't my usual self and asked why I seemed a bit flustered today! I explained how my day was going so far and he said well at least here you can lie down and catch your breath. Haha he was right !!
So after catching my breath - it was out of the stripes and into my own clothes and back into the car and onto the dentist!!
Poor Miss C has  a wiggly tooth - this has allowed a bit of infection to get in underneath and her tooth was not coming out easily so we went to have it taken out!
When we went into the dentist she showed me how up above another tooth was breaking through the side of the gum as the baby tooth below was holding fast.
So it was recommended that it was removed also.
Oh my poor Miss C - 2 teeth out in one go.
Now if you know me you will appreciate that I do not enjoy going to the dentist at the best of times - and after the first part of the day my resolve was not great!!

Out came the happy gas - for Miss C - hmm I wouldn't have minded a few puffs hehe!!
The area was numbed and we were under way. Poor Miss C was quite upset about the whole business - I know that her resolve is also lower with all that is going on.
When the dentist asked me if she was usually this way or if it was more related to my breast cancer - that was me. I nodded and my eyes welled up with tears . Before long some had escaped down my cheeks - I was trying hard to hold it together to keep Miss C as calm as possible. The dentist was lovely and very soon all was done. Afterwards the dentist asked if I was okay - I laughed and said I had been fine until she had asked if  Miss C  was struggling with my diagnosis. We had a lovely chat and soon she and I both had teary eyes - I said we better sort ourselves out before going into the reception area or any patients waiting would not be staying long - they would all be running out the door seeing all of us with teary eyes!!!!
I was also very touched that she had seen past Miss C immediate response and recognised what was really affecting her.
So that was our last stop for the day.

I was very relieved to be climbing into the car and heading home!!
I was exhausted !!

So now the troops are in bed - as am I.
I must say that as nice as the medical people are that I come into regular contact with on this journey - there are days when you don't really want to be seeing them at all.
The surgeon had said right at the start that the next year will be more or less taken over by dealing with my diagnosis - he wasn't joking!!
Travelling in a time machine to the end of that would be pretty appealing right now!!

Well thankfully tomorrow is my last radiation of the week and I have 2 days zap free - yeeha!!
We are seeing a few friends over the weekend - mostly as they want to see mum before she goes back home.
This will be her last weekend with us - it doesn't bear thinking about really!!!
She has been an amazing support and comfort these last weeks and I am so thankful she has been able to be here at this time.

Just saw this and thought of you mum......


Your arms were always there when I needed a hug
Your heart understood when I needed a friend
Your gentle eyes were stern when I needed a lesson
Your strength and love have guided me and given me wings to fly !!

Love you mum x

Friday 23 September 2011

The Circle of life !!

Well it isn't even lunch time and I have already had an ultrasound and my daily zapping!! Woo hoo !!
I almost had another accident on the way today - as I was driving a rather large spider flew onto my face!
EEEEEkkkkkkk!! I pulled over and jumped out of the car - passersby must have been wondering what this scarfheaded women was doing jiggling around on the road side!!!
I shook myself off in the hope he would dissappear outside the car - but no he was still there!!
After a few futile attempts to get him - I had no choice but to get back in the car and drive to my radiotherapy appointment!!
I had all the windows open - thinking that bustling air around me would keep him away.
Boy was I praying he didn't make a reappearence on my drive to my appointment. Thankfully he didnt - but I still dont know where he is hiding !!!

Yesterday we had a fun morning going to see the Lion King on the big screen. We saw it with a friend and her 2 littlies who are aged 4 and under. Too sweet to share a movie experience with them.
My eldest A was asked numerous questions about the movie during the movie ie why is it raining? why are they fighting etc !!! What a giggle .It will get her into practice for the future hehe !
Watching it always brings back memories of days spent in Africa - I loved living there! - there is something distinctly special about Africa and her people!



I guess I have been a bit reflective over these last days . We had lunch over the weekend with a very close friends family who are visiting other family here. It was such a treat to catch up and chat about days gone by.
Dont get me wrong we have a great life here and we have been so blessed in our current road. We have been overwhelmed by the continued kindness over these last months - the number of meals we have received has been incredible!!
We have however moved around quite a bit over the years and have had to say goodbye to many wonderful friends.
Somedays you just wish you could pop in for a cuppa and a chat - or even better have everyone together in the same place!!
The funny thing is that as I have been thinking of friends afar - just this week I have received 2 parcels in the post from overseas friends. They must have known hehe!!

Another lovely friend from the UK sent me this message yesterday.

My peace I leave with you
not as the world gives
My peace is with you , around you, before you and behind you
I am with you.

I found this so encouraging in a week where at times I have felt unsettled.
 Our Father has our heart and our peace is in and with Him.
He will remain our constant even when things change around us - be it from our own doing or by something beyond our control.

God has not promised sun without rain
joy without sorrow, peace without pain.
But God has promised strength for the day
rest for the labor, light for the way.
grace for the trials, help from above,
unfailing sympathy, undying love.
(Annie Johnson Flint)

Tuesday 20 September 2011

A life filled with choices !!!

So the days are moving by and I am into my 2nd week of radiotherapy.
I have to be honest I am not enjoying the experience - I know that it is a means to an end and that every day is a step closer to the end - but I'd rather be doing something else with my days for sure!!
The sunburn't redness that is appearing on my skin could so easily be achieved by lying on a beach!!



In facing my breast cancer I have realised more than ever that life is a series of choices!
 We may not be able to control many things/circumstances but we always have a choice.
I am trying very hard to choose what is positive and focus on the good as much as possible!
I choose life.
I choose to have faith even when my body is failing me.
I choose not to be discouraged each passing day I put on my headscarf yet again.
I choose to be thankful that although I have lost my hair - my eyebrows and nails are still intact..
I choose to be thankful for friends who have stood by me even though the road is long!
I choose to trust God in my fight even when I hear of others losing theirs!

What do we choose when things don't go the way we think they should?
What do we choose when someone lets us down?
What do we choose when some friends become acquaintances ?
What do we choose when we feel alone?
What do we choose when things are going our way?

From the minute our eyes open we are faced with choices!!
Even though we want to make the right choice - in our selves we can get it wrong. I know I do !!!

There is a song that says
 You are my strength when I am weak
  A shelter in the storm
  A very present help
  When all my hope is gone
  My God is great !!!

Each day I open my eyes I am faced with my own weakness as I go through treatment for breast cancer and the side effects of that.
And yet even as I face the choices before me daily - these are made so much more managable when I choose to remember that my God is indeed great.
Infact my choices need to be a reflection of His choice - choosing me.
Even though I am weak - He is strong. He stands with open arms - welcoming me as His daughter. He chooses to love me unconditionally , He chooses never to give up on me even when I may appear to have given up on Him, He chooses to carry me when I feel I can go no further.
He chooses me - and He chooses YOU !!!

Our choices can be positive when from the start of our day we choose HIM remembering that indeed it was He who chose us first.
His love for us is all embracing - He wants us to be the best that we can be , He wants a relationship with us !
He wants us to choose Him and let every other choice flow on from that!!
For God so loved the world ...................
If all our choices where motivated out of Love - wow - what a different place our world would be!

I saw this clip recently which has particular relevance for me but in essence its about how love can see you through.
www.youtube.com/watch?v=WxIt70j_SPk
Martina McBride I'm going love you through it ..

I hope that you find it uplifting - love can make a difference !!!!

For more on being chosen go to
www.holleygerth.com/heart-to-heart-with-holley/2011/9/20/you-are-chosen.html

Friday 16 September 2011

A sense of humour is definitely required!!

I am sitting on our verandha at the moment.
It is an absolutely glorious day here - the sun is shining and a soft gentle breeze is carrying the sweet smell of orange blossoms in the air!!
Just beautiful.




Well this is definitely the calm after the storm!!!!!

My poor mum had been suffering a bit of muscular pain and a headache since our accident last week. We had put this down to a bit of whiplash however her headache didnt seem to be lifting so we thought we better just get it checked out . I took her to our local GP thinking he may suggest a higher dose muscle relaxant or something.
Mum went in and I waited outside. She was in there for quite a while and I was beginning to get a bit concerned when she came out with the Doctor.
He handed a form to the nurse and she was the phone booking an appointment for a brain scan !!!!
Seriously - well I turned to my mum and said what is happening.
She said the GP had done some tests and he wasn't happy and was sending her for an urgent brain scan. He was concerned they may be some bleeding in the brain!!
Well with all that has been happening over these last months you would have thought that I would have collapsed into a heap - but no being the loving daughter that I am I just burst out laughing!!
I couldn't believe it - saying the words 'what next?' are banned in our household!!!

So there we were back in the car heading not to the pharmacy for a few stronger painkillers -but of to the radiology department for a CT scan of the brain!!
Well mum and I both had a giggle in the car on the way there - we did also pray of course that the scan would be clear and anything of concern would be fixed before we got there!!
In my heart of hearts I felt that all would be fine but I am also open to all possibilities these days!!!
We arrived there in no time and before long mum was taken in while I waited outside!!
I phoned my husband to relay the developments - he couldn't believe it - he asked me if he should come down to be there with us!!
I said to wait until we knew what was what!!
Well soon mum was out again and we had to wait for the films before leaving.
The GP had said we would be told the results there at the radiology department but we were given the films without the results.
When I asked they said no that wasn't their usual practise and we had to get the results from the GP.
I said well one would hope that if mum had a bleed on the brain they wouldn't just let us leave!!
'You would think so" was her reply.

So we headed home - I had called the surgery to speak to the GP he wouldn't be back for another few hours.
Mum went to lie down and we waited to get the results. I called the GP again at the time I was supposed to - still no results!!
I took the scans and had a look up against the light - the one thing I could see was that the left side looked the same as the right all the way through so I was guessing it would be okay - not that I am a brain specialist hehe !
It took another 2 hours before we were told mum was all clear!! What a business. Her headaches were in response to the whiplash after all.
I am pleased to say that now after a couple of days she is so much better!!
When we were at home I tried to do the tests the GP had asked her to do - and I couldn't do them either - so not quite sure what that means !!
Maybe its hereditary!!! Or perhaps my brain really isnt working properly after all!!!

So another day of drama and excitement came to an end.
Never a dull moment here thats for sure!

Well I have had my first 5 zaps so far - week 1 over ! There have not been too many side effects so far thank goodness. Just a bit of background nausea - yesterday I did have a very strange turn with increased nausea and lightheadedness. I didn't feel well for most of the day after but have felt better again today!!
Just hoping I wasn't given the wrong dose yesterday!! I now expect the unexpected !!!
Anyway just thankful I am feeling better today . It is school holidays now for 2 weeks and the weather is looking good so we may all be radiating in the glorious sunshine next week for sure .......

Thursday 15 September 2011

Radiotherapy is on it's way!!

Well it is 3 down and 25 to go!!!

Feels like a neverending journey!!
I arrived on Monday with my radiotherapy gown that I had been given and my tube of aloe vera gel.
 The first thing you do is greet the receptionist on your way through and then head to the changing rooms to don the ever so stylish blue and white striped gown!!!
You then sit in another waiting room with a few other blue and white striped gown participants!!
There is a large flat screened TV on the wall to distract you - oh yeh!!!
So before long I am called and am directed to a machine known as Stradbroke!! There are 2 ladies and a male in attendence - the lady who had called me said so Deb are you ready to start your 25 treatments.
Oh I replied I thought it was 28! This is what had been discussed with us at our initial appointment.
Well this caused a bit of a muddle as the machine had been calculated to do 25 and not 28 - as it isn't just a case of adding on 3 more a recalibration was to take place - but we were going ahead with the first one in any case.
My radio oncologist came in to check the positioning and reassure me that we were doing 28!
So gown off - some modesty was preserved over my L side and then I was pushed and pulled here and there and measured here and there and drawn on here and there.
I was told to lie very still and the technicians would leave the room as I was xrayed and zapped. A bell sounded as they came and went!!
It took quite a while to get all done and I left there about an hour or so later - the staff were very pleasant but nevertheless I wasn't really looking forward to repeating this week after week!!
So the next day was the same - this time I was led into the other machine room known as Fraser. I now had a different male and female technician /radiologist looking after me.
Once again I was moved around to line up my tattoos etc and this time my modesty fell to the wayside as my gown was taken away completely to get me aligned correctly. So there I was topless AGAIN!!!
Eventually we were ready to go - as the machines generate such high heat the rooms are airconditioned - I was in there for over 25 mins and was nicely chilled by the end of it!!
I had to wait almost 40 mins before starting yesterdays treatment as the settings had not been altered from the mixup the day before - the radiotherapist was very apologetic about the delay.

And so today we were back again. This time another male attendee that I hadn't met yet called me in and I just had 2 male technician /radiologists sorting me out again.
Thankfully today all went a bit faster as they are just making sure over the first few days that everything is in the correct position for zapping!!
I am happy with that as I certainly don't want to be radiated on the wrong spot!!!!
I did have to laugh to myself though as one of the male technician's said to me today now just take a deep breath and breath out and relax into the bed.
Well haha - picture me half naked lying on this curved contraption with my arms raised above my head and 2 strange men hovering over me with marker pens and rulers !!!
Does that sound relaxing to you ........

Anyway - all a means to an end. Somehow the radiotherapy seems a bit worse than chemo in a strange sort of a way. I guess with chemo you go once every 3 weeks and yes you fight the side effects for days after but you are at home. Here you are faced with this every day and once you are marked and placed you lie alone in this bizarre position in a white quiet room. The only noise you hear is the clicking of the radiotherapy machine.
I think that this may improve as the sessions get shorter once my positioning is set but I am not looking forward to repeating it another 25 times!!!

So there we are chapter 3 - Radiotherapy is on its way!!
Mum and I went and picked up a replacement car today to use whilst mine is being repaired - when I left it in today - I was told the damage amounted to $1000's !!
Thank goodness for insurance!

We had another bit of excitement in the day but I shall fill you in on that one later - another long story!!
Have a great day whereever you are !!!







Monday 12 September 2011

Where I am weak , He is strong!!

We have had a wonderful weekend of celebration - Miss C turned 10 yesterday!!
I cannot believe a decade has passed since her birth 10 years ago.
It was a day that changed the world as it was 9/11. We were waiting in the parents lounge watching TV on the ward. I was having an elective caeser due to a previous difficult delivery and expected size of Miss C. She turned out to be 10lbs11 !!
Just as we were called in - we saw something coming up on the news - but we went off to have our baby with no knowledge of the tragedy unfolding !
It was quite surreal as when we returned to the ward with babe in arms - we could have cut the atmosphere with a knife. Staff members were crying as they had loved ones overseas - there was shock and disbelief all around.
And yet in the midst of this despair - God had given us a precious gift - a little person who knew nothing of what was happening around, a little person who would bring us great joy, a little person who would grow into a tender hearted girl, an encourager and one who loves her creator! A ray of hope in a very dark day.

Today as a face the next chapter in this Breast cancer road - I am so thankful that God brings hope in the darkest places. I am feeling weary and would love a time out but that is not possible yet. This morning I prayed God would help me and strengthen me in my weakness!
This is what I read not long after

Give thanks to the Lord, for He is good!
His faithful love endures for ever.
Let the congregation of Israel repeat
His love endures for ever.
Let Aarons decendents, the priests repeat
His faithful love endures forever
Let all who fear the Lord repeat
His faithful love endures forever

In my distress I prayed to the Lord
and the Lord answered me and rescued me.
The Lord is for me , I will not be afraid.
What can mere mortals do to me?
Yes the Lord is for me ; He will help me.
I will look for triumoh at those who hate me
It is better to trust in the Lord than to put confidenece in people.

Though hostile nations surrounded me I destroyed them all in the name of the Lord
Yes they have surrounded and attacked me,
but I destroyed them all in the name of the Lord
They swarmed around me like bees
they blazed against me like a roaring flame.
But I destroyed them all in the name of the Lord
You did you best to kill me oh my enemy,
but the Lord helped me
The Lord is my strength and my song
he has become my victory
Songs of joy and victory are sung in the camp of the Godly
The strong arm of the Lord has done glorious things
I will not die but live to tell what the Lord has done......


I write this with tear filled eyes!!

What hope when facing the darkness !
Just leaving to get my first radiotherapy zap - will fill you in later x

Friday 9 September 2011

Obstacles in the swimathon!!!!

So when you think you have been stretched as far as can be - you're wrong - there is more!!!!

It has been a strange week.
 Each day has had its challenges - Monday  Cardiac echo , Tuesday Radiotherapy preperation, Wednesday bloods and visa info, Thursday IV Herceptin and sad movie, Friday car accident.
I kid you not we were in a car accident today. Thankfully no major damage to the persons involved but the side of my car is a different story. Both doors on the Left side need to be sorted plus a few other things on the left side. It all happened so quickly - I was turning into a shop from a two lane road and kaboomb!!!!
We were shaken up  and now a bit achey but thank goodness nothing more . I will need to leave my car in the garage for up to 2 weeks - great timing considering I start radiotherapy on Monday and need to go every day. We may be able to get a car to use in the interim so hopefully will all be sorted out!!
The good news is that both parties involved are with the same insurance company so hopefully processing will be easier!!
Just another whirlpool in my swimathon!!!!!!




It is quite unbelievable what we have had to face over these many months - challenge after challenge - a real marathon - with a built in obstacle course!!
I am quite apprehensive about even thinking what next as it is just never ending!!!

Miss C is turning 10 this weekend - she is very excited about getting into double digits!! I am determined that this will not spoil her birthday!
Her burn wound is healing well - and she is getting her ears pierced!! Actually just writing that induces concerned thoughts!
When my eldest daughter had hers done - we had been recommended to go to a Drs clinic - well what a fiasco that turned out to be!!
She was pretty nervous when we went to start with - the lady doing it didn't look terribly confident either!!
Well we had a bit of a disaster as when she fired the earring from the gun into the ear - it went in but the gun didn't detach!!
So there was Miss A with her ear pierced with an added attachment. She was as white as a sheet.
The lady doing it tried to jiggle it off but it wasn't moving.
I suggested I would hold it and perhaps she could get something to prise it off.
She disappeared for a bit and then returned with the most enormous medical forceps that you could imagine!!
Miss A's eyes grow wider and her face grew paler!!
Thankfully we got it off - and then there was still one to go!!
Well Miss A was ready to run out the door but we reassured her ( not quite sure what we were basing that on at the time) and the second one went in fine!!
What a laugh - in retrospect of course!!!
So now you see why I may be slightly wary - we are of course going to a completely different place  for miss C!!!

So there you have it - a week of challenge and tears!! They are still a coming - am hoping for some tears of joy this weekend. Wouldn't that be nice for a change!!

I shall end with a few words from the ever optimistic Eeyore!!

"Its snowing still " said Eeyore gloomily.
"So it is" said Pooh
"And freezing!"
"Is it ?"
"Yes " said Eeyore
"However " he said brightening up a little "we haven't had an earthquake lately!!"


Hmm always look on the bright side of life hehe ..........

Tuesday 6 September 2011

I am a marked woman !!!!

Okay so 2 days into the week and I am on that rollercoaster again for sure!!!!

Yesterday was my cardiac echo appointment! They have to keep a check on the heart when having herceptin as it can have an adverse effect on the hearts functioning! Physical functioning but not emotional so I guess thats a good thing hehe !
I always hate the hospital appointments as I guess I can bury my head in the sand a bit in between but going there always confronts me about what I'm dealing with.
My lovely mum came with me of course - we dropped the girls at school and headed straight to the hospital!
Parking is always a challenge but we found one easily and not too far away so we were off to a good start at least!
The appointments were running quite a bit behind so I sat about 40 mins waiting! I hadnt put too much thought into my outfit that day as I had to pull my top up over my head! I joked to my mum that they would get a fright when my headscarf came off along with my top.
I had noticed that it was a man coming out to call in the patients - last echo I had a lady and was really hoping that it would be her again. Having the echo done requires you to lie topless and have an ultrasonic probe pushed into your left chest in order to see the heart.
The last one was pretty uncomfortable and I didn't fancy the man pushing about on my remaining boob!!
Well when I was called it was a lady who took me in - I breathed a sigh of relief!
This was however short lived as I was taken into a room where a VERY young looking technician was to do my scan.
Oh well stripping for strange men all over again! Here we go!



He was of course very professional and my boob wasn't in the breeze for longer than it needed to be and he did most of the scanning undercover!
On a positive note - it certainly wasn't as uncomfortable as the lady who had done it previously. The scan takes about 40 mins so it felt like it took forever!
After it was done I asked him if he had seen anything exciting!! Not sure why I even asked as they never actually answer such a question!
He said he couldn't really say but didn't think I should worry!! Hmm - should I or shouldn't I !!!!
So that was that and we headed home again!
I am still really struggling with fatigue so it was off for a rest for me again!!

Last night a friend - dropped off the most delicious meal for us. I have been amazed at how faithfully food has been provided for us - at least if everything else is coming apart I know the family is eating well!

And so one down and more to go.
Today was my appointment for marking etc for the radiotherapy which will begin next week!
I am hoping to have my appointments first thing but sadly for the girls the second and third week are school holidays so we will just work around it ! Shame their school holidays haven't been much fun this year!
The first one I had my operation , the second one I had chemo and the third radiotherapy!! At least my mum is here this time and they can get out and about and do some things together - so I am very glad for that!
The staff at the radiotherapy place are really friendly and welcoming. First I was taken over to the xray side to have my ct scan etc. I was given the gown and shopping basket - memories of this at the beginning of this road came flooding back!
Topless again I was taken into the scanning room( with a gown on of course) - this time there were 2 lovely ladies sorting me out.
I had to lie on this hard and rather uncomfortable convoluted contraption to get the right positioning and yes you guessed it off with the gown!
Next out came the markers pen and I was marked. Then the oncologist came in and put on the more detailed markings!! The ladies made sure I was in the correct position - they said I was straight but I felt like a bent banana!!
Mini ballbearings were strapped to me - these would show up as position markers for the radiation and then the ct scan was started!

It wasn't long before I was done - I came out from under the oversized donut machine and the ballbearings were removed!
Then I was inked and tattoed and I was done!!
So off I went with my shopping basket to reclothe myself!!

I then had to head back to the radiotherapy department to see the nurse for my education re side effects etc!!
I had had a lovely chat with one of the radiotherapists who did the ct scan - she was the same age as me and I think it is must be quite confronting when you are scanning someone who could be you. Life doesnt always go as you expect !! Carpe Diem !!
And so in with the nurse next - mum came in with me to this bit. Once again she was a really lovely lady - chatted re burns , creams etc. We got some bits and pieces to read and some aloe vera gel and creams to use and then finished with a tour around where I would be going!!
So we were all set - I am tattooed and ready to go !! Well not quite sure if I am ready but I am going !!!

I am back on my bed - feeling tired and teary I have to say.
I am now in the sixth month of this ride - boy does it go on!!



I shall end this blog with the delightful words of Christopher Robin to dear Pooh.

'Promise me you will always remember, You're braver than you believe, stronger than you seem and smarter than you think!'

Sunday 4 September 2011

It is well with my soul ....

Isaiah 43 says ' When you are in over your head, God will be there. When you are in rough waters, you will not go down. When you're between a rock and a hard place, it won't be a dead end!'

It is been a rather full weekend .

On Friday mum and I had a coffee with my close friend's (who lives in England) mum, husband and daughter! We had such a lovely time together. Lots of stories and laughs! It made me feel closer to my friend who is so far away and yet miss her all the more! We lived next door to each other in the UK for a number of years and had that wonderful ability to pass sugar and milk over the fence! Yes we really did that haha - was a unique and very special place to live in our cul-de-sac. Our families plus another neighbour used to go shopping for Christmas trees in winter , in summer we could be seen sitting outside sharing a bottle of wine  and in between we shared many hours of fun and laughter together!
Happy memories!!

Yesterday mum and I went to a ladies day organised by our church. Was a great opportunity to meet other ladies, spend time with friends old and new and to top up the spiritual tank. I am physically exhausted but am glad I went.
It is always a bit challenging going to places where you don't know most of the people as I am aware that they have never known me before and their first impression of me is as this tired, pale headscarfed person!!
At the same time I have also realised over these last months that I am at peace with myself - yes I am looking forward to my hair growing back and looking forward to when everyday my thoughts aren't linked to breast cancer treatment and survival.
I have learn't a lot about myself and a lot about others!
I have learn't a lot about my faith .
I have had to think about all sorts of things and have also realised that I am at peace about dying!
Now don't be distressed I don't think that that is on the cards just yet but it is going to happen to us all one day. I have just been forced to really think about it !
I now know for sure that I am not afraid of that and in fact if our faith is true - what a wonderful day it will be to run into the arms of our heavenly Father!




It is Fathers Day here today so B was surprised this morning with a singsong from the girls bearing gifts and cards!!
B has plans to grow fruit trees so the girls got him a lime tree , and a few other plants for the garden.
It will be quite wonderful to see the trees planted and grow and in time bearing fruit!
This will be a gift that keeps on giving in a far more positive way for sure !!
We had a lovely lunch at our local - it was a buzz with dads and their families!
I'm afraid when we came home I went to bed for the rest of the afternoon - but the girls and B had fun together!

I have felt encouraged this last week as on 2 separate occasions I have had ladies come to me and say they fought this fight and are now doing well . One was in a cafe I went to and she has been cancer free for 7 years and the other was a lady I met yesterday who has been cancer free for 10 years!
Now that the chemotherapy and operation are behind me - my mind is thinking about what is to come!
My body feels as if I have run a marathon and yet walking to the feed the goats leaves me breathless!
Every day I am thankful for my surroundings, for my family near and far for whom I have a fuller appreciation!!
So this week ahead is filled with all sorts of delights - I am starting with a cardiac echo tomorrow to see if the Herceptin is having any adverse effects on my heart!
I am hoping for the best!!

Heb 13:5b Never will I leave you ; never will I forsake you. So we say with confidence, ' The Lord is my helper. I will not be afraid."





Friday 2 September 2011

Music and tears ...

Can you believe it is September already !!

Well Miss C is doing well after the drama of Monday !! What a business. She is a very brave young lady.
We have to keep a dressing on for a week and hope that all is healing well beneath!
As for me I am hanging in there - have been feeling a bit flat this last week. Feeling really tired still but the side effects haven't been too bad thankfully - just getting a lot of bone pain this time. Finding I am incredibly stiff and achy first thing in the morning and towards the end of the day!!
I went to the specialist shop yesterday to have a peek at the prosthesis - pretty weird holding your breast in your hand hehe !! Am heading back next week for a proper fitting!!
Anyway this is just as it is so keep swimming.

The weather has cheered up beautifully - always good to see the sunshine!! My poor mum has had 2 weeks of rain so will be nice for her to enjoy the sun!! It is such a treat having her here - so enjoying her company and support. The days at home were a bit quiet before she came - we have been out and about a bit - but also lovely just relaxing on the farm together! Have managed to do a few bits and pieces here which has been great - getting my house in order so to speak!!!

Well our family are all watching X-factor at the moment. We all love music and singing! The other night we watched an audition that had us all in tears! My youngest Miss C had tears streaming down her face - saying that the lady reminded her of me! She cuddled me for ages after - such a tender heart and has had to face so much!I found out just the other day that a number of Miss A's friends didn't even know what has been happening - also another very strong, brave girl ! It was all very emotional. I guess for me it also was just seeing Pamela brought my reality very close. She however had a far greater struggle - an amazingly courageous woman!!
Here is a snippet .....


http://au.tv.yahoo.com/x-factor/video/-/watch/26461557/audition-2-pamela-cook/


The oncologist had said to us that often in the beginning you are so focussed on getting through the various treatments that you don't always think about what is happening to you. I have tried not to bury my head in the sand and face things head on but I guess the magnitude of what you are going through does hit in waves!!
Next week is filled with appointments again - cardiac echo, ct scan and radiotherapy tattoos , herceptin etc . So will be very much back on the treatment train then!
Today mum and I are heading out to have lunch with a very special friend's (who lives in England) mum who is out here on holiday. So that will be lovely - it is such a beautiful day and we will be near the sea!!

So I better get a move on and powder my nose and cover my baldness etc!!
Have a great day whereever you are!!





Monday 29 August 2011

Its raining - its pouring!!!

Okay so I was going to write this earlier but we have had a bit of excitement since then!!
Earlier this evening we took our youngest daughter to the drs as she had burnt herself quite badly over a large area on her chest!
I had put some green beans in a microwave steamer and while I was outside - the microwave beeped and Miss C thought she would take the steamer out of the microwave .
Needless to say it was extremely hot and she lost her grip and steam and boiling water flowed down her chest!
Unfortunately she was just in a little tank top which offered no protection over her skin!
My mum called me in to find Miss C - skin already lifted off in an area and redness all over. I turned on the shower to cold and placed her under in attempt to cool her skin and then we wrapped an extralarge iceblock in a pillowslip to hold on as we went to the surgery.
She was crying in pain but in such a controlled way - I was amazed - having burnt my finger on steam in the past I know how painful that was - so could only imagine how excrutiating a large chest area burn must be!!

Our Drs rooms are open to 7pm so thankfully we avoided going to the hospital emergency.
They took us into the rooms straight away and in no time the Dr on duty was there to see us!
Poor Miss C was in a lot of pain - he said the nurse needed to keep area cooled with sterile water so IV bags were opened and emptied onto C and then onto sterile towels which were laid across her chest and the nurse kept them moist by emptying the IV bags onto them.
She was so incredibly brave - not once did she scream or shout - just kept saying how much it was burning when they stopped pouring on the water!
They kept it going over about half an hour in an attempt to cool the skin - it worked very well and I think we went through a number of litres .
C was lying on towels - soon the water was flowing through the bed and forming a large puddle on the floor!
I was feeling a bit light headed in all of this so had to ask for a chair to sit down. Still battling after effects of the chemo so all fun and games!!

Well once the skin was cooled enough - the wounds were dressed with what described as cupcake icing!! Dressings were secured and we were good to go. The Dr ordered some stronger pain meds and we are to return tomorrow for a check and redress.
The nurses and Drs were so lovely and kind - so we were well looked after!!
So back home we went - the girls had been wanting to watch the start of the new season of the Xfactor.
It had already started by the time we got home - but we got Miss c settled comfortably on the chaise and she managed a bit of dinner and then after watching a bit of the singing it was into bed!
I have given her some more pain killers so hopefully she will manage to sleep through the night!!
Thankfully my mum is still here so Miss A was able to stay at home with her and Miss C is in bed next to Nanny tonight!!

Honestly what a day - just when you feel your reserves are on empty - something else happens to stretch you even more.
I had already been feeling a bit weary today - somedays you just don't want to think about breast cancer treatments , side effects etc. Somedays you don't want to look in the mirror and see a bald headed person looking back at you, somedays you just want to walk in the shops without a headcovering , somedays you just want get dressed without having to have to think carefully as you choose you clothes !!!
And then when you are tired of being tired something happens to show you that somewhere inside there is still strength to forge ahead!!

Yesterday we heard a wonderful preach about holding on in times of struggle - the words were so relevant to our circumstances! We are still facing challenges on a few different fronts yet we keep going!
Lamentations 3vs 29 there may yet be hope ...

Life will never be the same - we are learning to dance in the rain over and over again- even if at times the dancing is a bit shakey!!
It is still funny though how you can be feeling refreshed one day and then weary the next.
Well I am still amazed at our ability to go on - haha we were saying this craziness has become our new norm!!

So just keep swimming, just keep swimming remains our theme song.
However I must say that floating does have its appeal .........








Thursday 25 August 2011

Out and About !!!!!

Well each day that passes this week I am thankful and joyful to leave the chemo train behind !!! What a relief!!
I am still dealing with some after effects but all good as it will be their last innings with me - yeha!!!!

I feel as if there is so much to share I'm not quite sure where to start ! My mind and body have been busy!!
I surfaced out of the haze around lunchtime on Monday and am not looking back!!
I shall come back to the last few days but today I went OUT !!!! Yes I left the farm to see life beyond hehe!!
Mum and I had been talking with a friend about going to see the movie called The Help! I won't tell you too many details except to say see it!!
We were thinking of maybe going next week and yesterday I was just looking to see when it started when I saw that it was advertised to screen today in the morning - one screening in 2 cinemas at the same time at a very discounted price.
I thought this must have been a special prescreen deal!
Never one to miss an opportunity - thought we should try and go! I wasn't sure how I would be today but thought worst case my mum and friend could go alone and I would give it a miss.
I had been managing most of my side effects so far - the worst being another welt type itchy rash along my spine from the back of my head to the end of my back - very weird and annoying. But nothing an antihistimine didn't help at least!!
So I went online and booked the tickets - we were all set!!



Well what a giggle - later last night I was flicking through our local paper and just happened to see the movie adverts and saw that todays screening of The Help was infact a special seniors morning and it indeed included free morning tea for viewers!! It also said members could bring up to 4 guests. Hmm so I had just unwittingly gatecrashed a senior citizens event!!! The strange thing was that I hadn't seen anything about this on the online booking and it certainly hadn't stopped me buying the tickets!!! Then again with my chemo brain who knows - last month I paid the incorrect electricity provider a rather large sum of money!! Thankfully they paid it back! The worst part is that I clearily remember checking that I was doing it RIGHT!!! So much for that !!
Anyway back to the movies!! I was sure they wouldn't boot out a scarf clad baldie who had made an honest mistake but thought I should investigate further!
I looked up the senior card info and it was for people over 60 and offered all sorts of discounts etc!!
Well the problem was easily resolved - we just signed mum up online for that and we were ready. I could be the guest!!
So this morning arrived - I was still feeling tired but was looking forward to getting out!! Thought I could manage just sitting in the cinema!!
Well we arrived just on time - there had been a few dramas and tears before leaving home - all mine - nothing serious just a bit emotional.
We met our lovely friend and in we went to collect the tickets!

The morning tea was long since over - large tables with trays of food were still standing etc. We entered our cinema and there in front was a lady talking to the audience about all sorts of shopping info etc.
It was full - so much for staying away from crowds hehe!! We took our seats amongst the many and next seat numbers were being called and prizes given away - not your average movie screening for sure!!
All quite an experience!!
The movie didn't start at the scheduled time so we only ended up getting out after lunchtime!
It was an incredible story set in Mississippii - days of Martin Luther King - racial divide between' whites and colored '
The story is about an aspiring writer who wants to tell the story of 'The Help' from the maids perspective!
A tremendous movie that takes you through many emotions - I was thankful I had packed my tissues!!

I was feeling a bit shaky after so needed something to eat - we did that then headed home. It had been great to be distracted from my sideeffects and I was glad I had made the effort to go.
My legs are aching tonight and I am having weird tinglings again in my arms and legs etc - but it is worth it!!!

So there we are - a day full of unexpected delights!!
I haven't touched on the deeper aspects of the mind but since mine isn't firing well on all cylinders tonight I shall save that for another blog!!!!